I've been pretty bad at keeping up with my blog lately. March and April just blurred together for us and I can't believe it's already May! One big update is that we this week we took Noah and Avery to the neurologist for a consult.
Noah has had a history of febrile seizures. He had several when we lived in Iowa. Our pediatrician in Iowa kept reassuring us that he would outgrow these events, something we were very hopeful about. He had one in May of 2008, the week we were packing up our things to move from Iowa. I was really worried about Wade being away from our little family and Noah having more, but Heavenly Father blessed us and he didn't have any more Wade's entire 4th year. This past November (2009) he had another one that was about 12 minutes long. We took him to the ER, he had a very expensive little nap while they watched him and then got sent home with some expensive pedialite. I blogged about this incident
here. I later went to our pediatrician clinic and discussed with our nurse practitioner that we see there what we should do. She did suggest that we could see a neurologist, but I didn't' take her up on the referral because it had been about 15 months between his last two seizures.
Fast forward to this March and little Avery Ann. I've thought many times about how I need to blog and journal this, but obviously have done it. I did mention it on Facebook, but that isn't the same.
On March 5th Avery got her 1st year shots. (I know you are wondering what this has to do with seizures, but I will connect it later). I know this was a little bit after her birthday, but she was still recovering from the stomach flu when she had her 12 month well baby check up so we got the shots a little bit late. Nine days later on March 14, I took Avery into an after hours clinic for pink eye. We got the drops and went home.
The next day (also my birthday) March 15, Avery started to take a turn for the worse, she wasn't taking naps well. That afternoon I was sitting and rocking her in her room when I felt her make some jerking movements. The thought it could be a seizure did cross my mind, but I also knew she was tired and there are times your muscles do that right before you go to sleep. I turned her around (she was sitting facing out) and she seemed a little dazed and hot. I gave her some Tylenol and she did end up falling asleep for a little nap. Later that day I was holing her in the kitchen while making dinner and this time I knew it was a seizure. She jumped and both arms and legs (bi-lateral) were jerking. It only lasted a few seconds but I called our pediatricians office and made an appointment to see our nurser practitioner as soon as they could get me in (the next morning). That night she had one more episode. Each time was right as the dose of Tylenol would be wearing out and we would need to give her next one. Also each time she had fevers that spiked. I've seen this with Noah, so it didn't scare me terribly, but it is still nothing you ever want to see any of your children do , especially do repeatedly.
The next day, March 16, we took Avery in to see our nurse practitioner and sure enough she agreed these were febrile seizures and also she had an ear infection in both ears. Ear infections were always the cause of Noah's fevers that led to seizures, with the exception of the one last November. I don't believe that they checked his ears in the ER that visit, because the swine flu was a big deal and they were trying to get us in and out of there so fast so we wouldn't come in contact with it.
I took Avery (and 3 boys, because I was still watching Eric at this point) to the store with me to get her prescription and she had another fast jerky seizure while I was standing in line at the pharmacy. This one freaked me out a bit, because I couldn't exactly take her clothes off in the middle of the store to cool her off so I tried to get her to drink some milk from her sippy cup and just said a prayer that we would get our medicine fast. We did and were able to make it home soon.
10 days of amoxicillin followed.
An Easter Egg Hunt
A clam Dig at the beach
On the 13th day we got invited for dinner and Family Home Evening at our friends home. He happens to be a family physician. After dinner we were all sitting around the table visiting and This is when Avery who had been playing like normal, came up to Wade and climbed up in his lap and asked for some cookie. He gave her a piece but then a few seconds later she started to seize. At first he (and all of us) thought she was choking but once we could tell that she didn't have food in her mouth anymore and it didn't stop we realized she was seizing.
This seizure lasted about 3 minutes. I know 3 minutes might not seem like long but when your baby is unresponsive it can seem like an eternity. Her eyes were nystagmus and her arms and legs were moving. Wade and Doug turned into Dr. mode and they were spouting off medical jargon left and right. After she finished we took her temperature, which was only 100.4 Our family home evening lesson then became a big discussion on febrile seizures. Doug was concerned (as we all were) and he felt we needed to see a neurologist soon.
After a long night of Tylenol and the seizures returning, we returned to our office the next day where we found out her ears were still infected and started on round two of antibiotics. We also got a referral for both Avery and Noah to see a neurologist at the children's hospital in Tacoma.
Fast forward to this week. Thursday was the big date for Avery and Noah to meet with their neurologist.
The appointment went great. Avery and Noah were great and Wade and I were both impressed with the neurologist. He did a few tests on each kid and talked to us a lot about their history. In the end he agreed the diagnosis is febrile seizures. Only a small percentage of children have this seizure disorder, but once one child in your family has it, the other siblings have a higher percentage. That is most likely why Avery has hers.
Febrile seizures also tend to be hereditary. My dad says that his mom always told him that he had one seizure from a fever when he was a small child. I also have an 11 year old nephew who had febrile seizures, his, however, have developed into epilepsy and he is having surgery this summer.
Our neurologist did explain to us that we could have a EEG run on Noah if we felt like finding out if he has any abnormal brainwaves. However, the findings wouldn't really change what we do with him until the seizures get worse, longer or go out of the scope of the definition for a febrile seizure. We opted out of the test for right now and decided that if Noah does happen to have another seizure we will run the test at that time.
We were able to get a prescription for an anticonvulsant medication that we can use in case either kid has a seizure longer than 3 minutes. This really helps me feel better, I just hope I never have to use it. (Gage thinks the papers about this medication is pretty funny since it shows pictures of how to "insert" it if you get my drift!)
~~
A side note - one thing I do worry about is that Avery has her 15 month shots coming up next week. Let me start this next paragraph by saying, I will immunize my children no matter what. I will. That being said, I do sometimes wonder about the timing of Noah and Avery's immunizations and their seizures. The seizures were never caused by the immunization, but the fever that both of them have might have been caused by the immunization. Or it could just be coincidental. They also present with symptoms of ear infections each time. I won't ever know. But I do wonder. Noah had fevers after his 1 year and 15 month shots. Avery had her first one after her 1 year shots. Like I said before, coincident or not? I don't know. I even discussed this with the neurologist. But it still won't change if I immunize my kids. I will, and I like to stay with the normal schedule. The diseases we are immunizing against are more scary to me than a febrile seizure.
~~
So, that is our very long neurological update for the year. I really pray that this will be my last time posting about our little babies and seizures. I know there are worse things that other mothers deal with, things can always be worse. They are overall really healthy children and we are blessed to have them in our family and blessed with the comfort of consults with great doctors and friends who help us.