Finally after lots of waiting and rescheduling, Thursday this week Lucy had her appointment for a sedated echo on her heart.
Honestly, going into this I was more nervous about the fact that she couldn't eat for a couple hours before the test. I wasn't sure how she would do with that. I couldn't feed her after 5:30 that morning, and she usually eats at 7, so I was kinda nervous for her. But she ended up being really good and not too grumpy till the very end.
Here we are right before the IV team came into the room.
She was such a trooper! I couldn't believe how good she was for the IV team. They had a therapist come with them and he had a baby app on his ipad that she watched the whole time. She was mesmerized! We downloaded the app too. (Baby View is the app) It's just black, white, and red images, perfect for babies. She really loves the one with little lady bugs crawling around the screen. She didn't even flinch when they stuck her with a needle!
Some babies they can give just enough medicine to relax, but Lucy did not like the "in between" state at all. She was pretty frustrated with it, and they had to give her extra medicine to make sure she was all the way out.
Sleeping away in post-op.
We got the results that day. It wasn't good new, or really bad news.
Lucy has pulmonary valve stenosis. We knew this information already. In January they measured the pressure going through that valve and it was a middle ground number - not too good, not too bad. But she was upset, so her heart was working a little harder, so that was the reason we did the sedated echo. With the sedated echo the number was a few points higher, but still middle ground. So our cardiologist said we should do an EKG.
Good thing we downloaded that lady bug app, Lucy was now awake and we needed her to lay still again.
After the EKG, we went back to talk to the cardiologist.
The muscle wall of her right ventricle has thickened a little bit from January and that isn't great news. It means that her little heart is working harder than it should. The right ventricle should have low pressure, but she has high pressure.
We got two choices. Some kids do out grow this condition.
So we could wait and come back in two months.
Or we could get an appointment with the cath lab and have a procedure to try and balloon the suprapulmonary.
Our cardiologist couldn't really say either way. So after a lot of questions, we decided to wait and have another echo done in 2 months. If it's still bad then we can go to the cath lab.
I am so glad Wade was there with me. I can never think of any questions to ask till I get home, but he started spouting off questions left and right. I guess sometimes all that medical background can come in handy;)
Lucy is growing and acting normal, and our cardiologist gave us lots of signs and symptoms to watch for. She has never had any of these.
I want to think that she will out grow it, since Gage has a similar murmur and we've never had to do anything for him but have it checked out every couple years. It was also hard to make the decision to send her back in for another procedure, even if it was in a couple weeks, after watching her be put to sleep that morning.
So we are kind in the same boat as before.
Waiting for another couple months.
And hoping she grows and her heart and little body can fix itself.
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hopefully I described and explained things right. I have to look at the diagram they give me and then it really makes sense, or have Wade explain it. Sorry if I didn't do a great job. Ask Wade if you really want to know.